July 17, 2020
July 16, 2020
Do you have epilepsy? Are you a parent, sibling or care provider for someone with epilepsy? If so, we would like to hear how you have coped since COVID-19 knocked on the door of your country. Are you willing to share your story and allow us to include it onthe IBE website COVID-19 page?
Learn more at the link posted below:
https://mailchi.mp/aaacc2997668/your-covid-story?e=0340d2c8d1
June 9/ 2020
Breaking News: The federal government has announced a one time tax exempt payment for those that receive the Disability Tax Credit Certificate. A one time payment of $600 will be distributed the week of August 10 2020. There is NO NEED to apply. People who are eligible will receive this payment via cheque or direct deposit.
December 23 / 2019
LivaNova SENTIVA VNS Therapy device, model 1000.
RE: a Safety Notice for the LivaNova SENTIVA VNS Therapy device, model 1000.
This message has created a lot of concern within the Canadian epilepsy medical community. We understand the concern regarding this notification from the American Epilepsy Society on the subject of the SENTIVA VNS Therapy devices.
This issue first came to light in August 2019 in the USA. A select number of devices were identified as potentially at risk. All unimplanted devices were removed from circulation, and American centres were alerted to this information.
This safety notification occurred prior to the Health Canada approval of SENTIVA. As such, all products available to Canadian patients are NOT affected by this notification. This safety notice does not apply to those patients implanted in Canada.
Ken Jeong jumps off stage mid-performance to help woman having a seizure: https://bit.ly/2LMgGY7
Epilepsy Newfoundland and Labrador presents a $25,000 research grant to MUN’s Faculty of Medicine: bit.ly/2JRiamI
(R-L) ENL Information Officer Sarah Mercer, ENL Executive Director Gail Dempsey, ENL Vice President Patti Bryant, ENL President Ron Stone, Researcher Dr. Gary Paterno, Researcher Dr. Matthew Parsons.
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