RESEARCH SURVEY
OCT 2019 – JAN 2020
The Ontario Brain Institute’s (OBI) epilepsy research program (EpLink) is looking to better understand the questions Canadians have about epilepsy and seizures. These questions could be about causes or diagnosis, treatment, managing day-to-day life or managing co-existing conditions related to epilepsy.
This is an opportunity for you to lend your expertise from your own personal/professional experience, and have your say in setting epilepsy research priorities.
Please complete this short questionnaire at: http://www.braininstitute.ca/epilepsy-psp
Further Information:
If you have epilepsy or experience seizures, or if you care for or work with someone who does, we want your help in setting the priorities for epilepsy research. Your answers to this survey will help researchers and research funding organizations better identify what is important to people living with epilepsy and/or seizures and incorporate their priorities when planning future projects.
This priority setting process follows the methods of the James Lind Alliance (UK) and is being funded by OBI. It is led by a steering committee that includes patient advocates, patient advocacy group representatives, clinicians, and healthcare professionals working with persons who have epilepsy and/or seizures.
COMMUNITY CENTRES
Easter Seals: http://www.eastersealsnl.ca
Empower: Disability Resource Centre: http://www.empowernl.ca/
Autism Society of Newfoundland and Labrador: http://www.autism.nf.net
Cerebral Palsy Association of Newfoundland and Labrador: http://cerebralpalsynl.com/
Newfoundland and Labrador Association for Community Living: http://www.nlacl.ca/
GOVERNMENT RESOURCES
Canada Student Loans Program: http://www.servicecanada.gc.
Services for people with disabilities: https://www.canada.ca/en/services/benefits/disability.html
Canadian Pension Plan disability benefit: http://www.esdc.gc.ca/en/cpp/
Canadian Disabilities Savings Grant: http://www.rdsp.com/tutorial/
Office of Employment Equity for Persons with Disabilities: http://www.exec.gov.nl.ca/exec/hrs/disability_supports/index.html
Inclusion NL: http://inclusionnl.ca/
EMERGENCY CARD
Downloadable Card: Emergency Card Download
We recommend persons diagnosed with epilepsy wear a medical alert bracelet but you can also take a card with you in your wallet that lists your medication and emergency contact information.
MEDICAL ALERT BRACELETS
Medic Alert: https://www.medicalert.ca/
Universal Medic Alert: This company offers one free medical alert bracelet if you or a loved one has a financial need. Click on the ‘Live Chat’ Icon in the Top Right corner to discuss with a sales representative about a free medical alert bracelet with certain conditions: http://canada.
JOB RESOURCES:
Prime Minister’s Youth Council: canada.ca/youth
CCRW YouthThe Future Program: http://www.ccrw.org/programs-and-services/youth-the-future/
Empower: Disability Resource Centre: http://www.empowernl.ca/
Easter Seals: Career Services: http://www.eastersealsnl.ca/
Avalon Employment: http://www.avalonemploy.com/
Recreational Sport for Persons with a Disability Funding Program
For the second consecutive year, Recreation NL is proud to be the administrator of the Recreation and Sport for Persons with a Disability funding program. The program aims to increase support, remove barriers and develop actions to support individuals with physical disabilities to participate in recreation and compete in sport activities. This program is cost shared between the Federal Government, Sport Canada and the Government of Newfoundland and Labrador, Department of Seniors, Wellness and Social Development through a bi-lateral agreement.
Recreational Sport for Persons with a Disability Funding Program:http://www.recreationnl.com/recreation-sport-persons-disability-funding-program/.
This funding program was available for a short time period in the 2015/2016 fiscal year however, 13 organizations were able to take advantage of the program. This year, Recreation NL is aiming to increase the number of organizations reached with the program.
FUNDING RESOURCES
Equipment Program – supports high performance/elite athletes and teams to attain the proper training equipment to perform to the best of the athletes potential.
Travel Assistance – supports high performance/elite athletes and teams to compete provincially, regionally, nationally and internationally at various sporting events and training camps.
Recreation & Sport Development Projects/Initiatives – provides supports for organizations/groups in the areas of transportation for on-going programs, training/personnel supports such as honorariums to support volunteers, training supports for referees, coaches, and classifiers, and purchasing equipment to develop and implement recreation and sport programs.
For more information on the funding program and to apply, please visit the Recreation NL website at http://www.recreationnl.com/recreation-sport-persons-disability-funding-program/. You can also contact Megan Cummings at mcummings@recreationnl.com or by calling (709) 729-0980.